Thursday, February 16, 2012

Frustration....

That's what I'm feeling. As of today I have been GF for 3 1/2 months. As I have written before, the beginning of all this was very scary for me, but I accepted Celiac Disease and moved on, finding great GF recipes and learning that this was very doable....But now I'm feeling the same fear and frustration I felt in the beginning....I expected a complete turn around once going GF...no more "issues", more energy, a whole new me....that hasn't happened. I have not cheated, not once...and while I have noticed some difference, the same "issues" are still there. I went to the Dr yesterday to see if we could figure this out, and he tells me he's only ever had one person for whom the GF diet didn't work...frustration. We talked about what it could be, he ordered some tests, said to try fiber....and I wait...I thought that maybe someone else might be going through this too??
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6 comments:

  1. The Other ErinFebruary 18, 2012 at 5:58 AM

    You're not alone. The only thing you can do is try to do your best. Unfortunately, this means diligence every minute of every day, day in, day out. I've been gf for over 3 yrs now & consider myself an educated consumer & am aware that I am, ultimately, my only advocate. Still, sometimes, "stuff" happens, even w/ the best of intentions. I recently got cc'ed by a multivitamin, which I of course took religiously. I did my research but not enough, apparently. Even getting into celiac headfirst & w/ a good attitude it's going to take you longer than 3 months to get squared away for life, and you will have to make adjustments along the way as your body changes. Celiac is not a digestive disorder, but a systemic one. It is very difficult for someone to be even legit 100% gf & to be able to feel like before w/o some sort of tweaking. Even in best case scenario an individual w/ celiac does not absorb nutrients as well as someone w/o. Sorry if a duplicate ?, but have you had a vitamin/mineral panel done to see if there's just that one thing missing that will make the difference for you? I know this sounds lightweight, but do you juice? I'm getting vibes & feedback that the sheer qty & concentration of nutrients has made a big difference for some people. Hang in there & I hope you give yourself credit for your efforts.

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    Replies
    1. ErinFebruary 18, 2012 at 8:55 AM

      Thanks! I did ask him to check vitamin levels, and I know he checked A & D....he also did a new celiac profile to see if there is any difference. Also checked thyroid I think and for H Pylori and pancreas...most of these of course only after I asked for them...so hopefully will know something at the beginning of the week. Thanks for reminding me it's only been three months...I guess I just heard so many stories of complete quick turn arounds that I expected that, and it hasn't happened...anxious to see what the tests show....

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    2. The Other ErinFebruary 18, 2012 at 2:31 PM

      Sure, people dx'ed w/ celiac or other gluten issues feel better after they kick the habit. But it takes a *lot* of work & constant diligence to feel as good as one should. IMHO, the majority of people that state they have a complete quick turn arounds would have to hesitate a wee bit if put on the stand. "Well, of course, I feel better, but I have to "x" and OD on vitamin B-12 & am sometimes I'm borderline anemic & now I'm addicted to juicing...." It's not as easy as just giving up gluten. Not trying to be a nay-sayer, it's just not that simple. Hang in there; you'll get it right.

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    3. ErinFebruary 18, 2012 at 8:10 PM

      Thanks girl!

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  2. UnknownMay 23, 2016 at 8:18 AM

    Hugs, 8th can be very hard. I hate to add too but for celiacs, the leaky gut can't typically handle lots of dairy. It's about 78% who have to go dairy free as well. Then there are cofactor reactions to other foods that have leaked into the bloodstream. A good diary might be in order. Another suggestion is to also be aware of cross contamination continuing from non gf family members bringing gluten into your home. 1 ppm is to much! I have seen one of my Celiac kids have a huge reaction to simply sitting on a couch a friend had eaten a cookie on earlier in the day. Toasters must be replaced, any nonstick items must be replaced, and all cointers, cabinets, small appliances and fridges must be thoroughly cleaned of gluten particles to keep you safe!

    ReplyDelete
  3. UnknownMay 23, 2016 at 8:18 AM

    Hugs, 8th can be very hard. I hate to add too but for celiacs, the leaky gut can't typically handle lots of dairy. It's about 78% who have to go dairy free as well. Then there are cofactor reactions to other foods that have leaked into the bloodstream. A good diary might be in order. Another suggestion is to also be aware of cross contamination continuing from non gf family members bringing gluten into your home. 1 ppm is to much! I have seen one of my Celiac kids have a huge reaction to simply sitting on a couch a friend had eaten a cookie on earlier in the day. Toasters must be replaced, any nonstick items must be replaced, and all cointers, cabinets, small appliances and fridges must be thoroughly cleaned of gluten particles to keep you safe!

    ReplyDelete

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